Friday, March 27, 2009

Radiation Treatment - Day Nine

Another nice day in Exville! Great news on The Ex's brain scan -- NOTHING THERE! heh. Nothing abnormal anyway. I was thrilled. The Ex was nonplussed.

He had a pretty good day and actually managed to put in a full working day, though much of it was busywork from home, and I had to remind him about what he'd done today when he sat down to input his hours in the handheld monster. Wait, that didn't sound right. I mean that cursed little handheld computer that schedules his work and keeps track of his hours.


Radiation was uneventful, as was the meds discussion with Rad-Onco doc. We are to see the Onco-Internist doc a week from today to discuss the next stage in treatment plan. (She is the one who said chemo might not be our best option).

Treatment plan. Hey! Does anyone ever get a WRITTEN PLAN? So far, for the Ex, it's been "take your 15 'electrocutions,' (Ex's term for radiation TODAY), and go do something you like to do, because you're not going to live much longer anyway."

And we took her at her word -- just like THAT! [ETC banging head on table!]

That was before I was INSPIRED. ;-)

Don't mess with us, now, baby, cuz we got FRIENDS and ADVOCATES and salt-of-the-earth people who, with one arm tied behind their backs, may know more about fighting for life against cancer than all of the onco docs in the world, put together.

That's all I'll rant about docs tonight, but I reserve the right to resume ranting another time; my Rx for ranting is 'as needed.'

Speaking of 'as needed,' The Ex's pain meds distribution system isn't quite right. Instead of taking as needed, we need to switch to taking as scheduled, so we stay ahead of the pain we know will come if there is a med lapse. Key to this management is a med log, however, you can't depend on the integrity of a zoo that's managed by the animals.

Case in point: A couple weeks ago, The Ex said he'd like ShamWows for Christmas. I left my crystal ball at home and I don't know how things will be at Christmas, so I ordered the ShamWows.

They arrived a good two months ahead of the advertised shipping schedule, and we celebrated their arrival by mopping up spills, excited to find the product works as advertised! (But don't bother with the extra money for quicker shipping. They came quickly anyway).

The next day, The Ex asked me if I'd written in his med log. I hadn't, but, when I looked at the log, I immediately saw what he saw: an entry in his handwriting that said he'd had "1-shamwow," and another entry later that said he'd had TWO MORE!

Perhaps Slurry Sleepwalking Ex has discovered the cure! Take THREE ShamWows and call me in the morning! Don't forget to chase with Scotch and ChiroCleanse Tea cocktails!

I'm to look for Oncos on The Ex's insurance plan tomorrow to see about second opinions. We can't afford to commit to a far-away cancer treatment center. It's a shame that your life might depend on the financial ability to do that, but that's just the way it is.

We'll check around locally and see how we do.

More tomorrow! Day 10! We'll be two-thirds through!